Text Size

a a

St Helena Privacy Policy

St Helena is committed to protecting the privacy of everyone who uses our services: as patients and carers or as employees and volunteers; and that of anyone who supports our work throughout fundraising, retail or lottery activities. This statement explains what personal data we collect and process, how we collect it, whom we share it with, and why we do so. It also explains the steps we take to keep data secure. If you have any questions about this privacy statement or our privacy and data processing in general, please contact our Data Protection Office or 01206 845577 or write to use at the address below. Please also use this address for Freedom of Information (FOI) requests. For patient privacy concerns the address is

What is personal data?

By personal data we mean any information that might allow you to be identified, such as your name, address, date of birth, credit card details, I.P. address, photo or video image or voice recording. For our patients, some of this data will be sensitive and relate to their health and wellbeing, ethnicity and religious views.

Who are we?

We are St Helena (Charity No. 280919), a charity that helps local people face incurable illness and bereavement in the North Essex area. Our registered office address is:

Myland Hall, Barncroft Close, Highwoods, Colchester, CO49JU

Our ICO registration no. is Z7113713

How do we collect personal data from you?

We may collect personal information about you when you take part in one of our fundraising events or challenges, make a donation, play our lottery or raffles, buy items in our shops, apply to work or volunteer with us or use our website. If you are referred to one of our clinical services we will collect data from you and may also receive it from other healthcare providers. Our current lawful basis for collecting personal information is contained within Schedules 2 and 3 to the Data Protection Act (2018).

What type of information is collected about you?

Fundraising, visiting our shops, and playing our lottery

The personal information we collect about you for the purposes of our fundraising, lottery and retail activities might include your name, address, email, phone number, date of birth, I.P. address, photo or video image and financial information such as credit card details. You may appear in still images or video footage using Closed Circuit Television (CCTV) that is used on some hospice sites for security purposes.

Staff and volunteer privacy statements

You can read the staff and volunteer privacy statements below:

If you are a patient

If you use our clinical services we will need to collect information such as your name, age, address, gender, and possibly sensitive personal information concerning your health and wellbeing, ethnic origin, sex life, and religious views. In order to provide complete care we may also collect some information about family members and carers. If you stay on or visit our premises, such as our Inpatient Unit, we may collect your image on CCTV. It may also be necessary to take still images of you for medical purposes, such as in the case of pressure ulcers. If you call our SinglePoint service your call will be recorded for training and quality purposes. We also receive data about our patients and their families and carers from other healthcare providers.

St Helena is part of My Care Record, an approach to improving care by joining up health and care information in our region. Health and care professionals from other services will be able to view information from the records we hold about you when it is needed for your care, and we will be able to view relevant information held by other providers. You can ask us not to share your information with other providers involved in your care, but this may have consequences for the care we are able to provide. There are rare circumstances when we are obliged by law to share your information even if you object, for example in the case of notifiable diseases.

From 1st January 2023 we will be asking patients whether they would like to opt into communications about the support and services available to you. They will also be asked if they would like to opt into communications about the various ways they can support St Helena, as well as whether they would like to opt into hearing about our carefully selected partners. These carefully selected partners include Radfield Home Care in support of St Helena, Total Clean in support of St Helena, Creation Station in support of St Helena and members of the North East Essex Health and Wellbeing Alliance. You can update your communications preferences and withdraw consent at any time. Please see below 'Accessing and updating your details' below for more information. 

The National Data Opt-Out

The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes. To find out more about your rights, please click here.

Using our website

If you use our website, we will store data about your internet browser, I.P. address, the timings of your visits, and a record of which pages you looked at.

Use of 'cookies'

Like many other websites, the St Helena website uses 'cookies'. Cookies are small files stored on your computer that allow websites to recognise you when you visit. They store data about your browsing history but will not identify you as an individual. This helps us to improve our website and deliver a better more personalised service.

You can switch off cookies in your browser preferences but doing so may result in a loss of functionality when using our website. To see how we use cookies, and what they are please see our Cookies policy page. This page also includes instructions on how to disable cookies if you don't want them to be used.

By using our website and services you agree to be bound by the terms of this statement.

Links to other websites

The St Helena website may include links to other sites, not owned or managed by us. We cannot be held responsible for the privacy of information collected by website not managed by us.

How we use your information

We may use your information for any of the following depending on our relationship with you.

For our fundraising, retail and lottery services we may collect data in order to provide you with products and services (sometimes as part of a contract), process a donation you have made, to send you newsletters and other communications about our work or to allow you to take part in events.

We may occasionally use desk research and profiling to identify potential donors and help us better understand our current donors. Such information is compiled using information you have provided and publicly available data. External sources could include Companies House, social media platforms, newspaper articles, and wealth listings. We may also use profiling to produce short biographies of individuals where they are due to meet with a staff member or attend an event.

We carry out research such as this in order to better understand donor motivations and preferences, with the aim of greater engagement with our supporters. By better understanding our donors we are able to tailor appropriate requests for support and ensure our approaches are relevant and consequently more effective.

We always seek to ensure that any research or profiling is done in a way that does not unreasonably or unexpectedly intrude on an individual's privacy. We also endeavour to make sure that in accordance with fair and lawful processing requirements under current legislation, individuals are made aware of the purposes for which we may collect and process their personal data at the earliest reasonable opportunity.

We respect your rights of privacy and are happy to provide further information about any Profile details that we may hold about you in accordance with your data subject access rights under current legislation.

In accordance with those rights, you may also at any time request that we update, correct or delete any Profile information that we may hold about you and/or no longer use it for direct marketing or fundraising purposes.

We collect personal data about job applicants and employees for administrative purposes and in order to comply with employment and safeguarding legislation, such as referrals to the Disclosure and Barring Service.

We collect personal data from our volunteers for administrative purposes and to comply with safeguarding legislation, such as referrals to the Disclosure and Barring Service.

When we collect data from patients and their families and carers, we do so in order to provide care to them and protect their wellbeing. We also collect and store it for the purposes of audit, quality control, and incident reporting.

Who has access to your information?

We will never sell or swap your details with third parties. We may share data you provide with trusted third parties, subcontractors, our regulators, and with law enforcement authorities. We may share patient data with other healthcare providers with the patient’s consent. We may sometimes also be legally required to share it with local authorities and our regulator, the Care Quality Commission.

Your consent is important

For direct marketing communications we collect data only with your explicit consent, which you may withdraw at any time. We will enable you to record your preferences using tick boxes at various points when we communicate with you.

Accessing and updating your information

We care about the accuracy of the information we hold about you. If you believe any information about you is incorrect or out of date, please contact us.

Fundraising: 01206 931468 or email

Retail: 01206 890165

Lottery: 0800 285 1390

Volunteering: 01206 931466 or email

For patients, please contact our SinglePoint team on 01206 890360


At St Helena we take your security and privacy seriously. When we collect your personal information we use a variety of technical processes to prevent unauthorised access including firewalls, digital surveillance, and encryption.

Any sensitive information you send to us (such as credit card details) will be encrypted. Non-sensitive details (your email address etc.) are transmitted normally over the Internet, and this can never be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, we cannot guarantee the security of any information you transmit to us, and you do so at your own risk.

If you're 16 or under

In some circumstances we may need to know if you are aged 16 or under and may refuse certain services, products or events unless we have your parent/guardian’s permission.

Your right to lodge a complaint with a supervisory authority

If you believe that we breached your privacy in any way, we urge you in the first instance to contact our Data Protection Officer. If you remain unsatisfied, you have the right to lodge a complaint with the Information Commissioner’s Office at the address below: Information Commissioner's Office Wycliffe House Water Lane Wilmslow Cheshire SK9 5AF Tel: 0303 123 1113 (local rate) 01625 545 745 (national rate)

Changes to this policy

We may amend our privacy policy from time to time, so please check back every so often for updates. This policy was last updated February 2024.

Go to basket

Go to basket