"I can’t walk away and say
it’s happening to somebody else"
Dawn is learning to adapt to a new life with a disability with support from the hospice. In this short video, Dawn describes how since she was diagnosed with primary progressive multiple sclerosis in June last year aged 51, she has been taking each day as it comes. Here you can read the transcript:
Whatever happens, happens; I've accepted that now. I have a care plan with the hospice and I’ve said that if the worst comes to the worst I would like to be in the hospice to pass away I don’t want to be alone. It is not always a nice subject for people to talk about but at the end of the day it is what it is. I can’t walk away and say it’s happening to somebody else.
I have multiple sclerosis. It does have quite an aggressive way of going so I’m not going to be around forever. I don’t think I will last more than maybe June.
The OT that came to visit me at home suggested that there were groups I could go to that might help but they were at the hospice and I think I was a bit mortified because like everybody you kind of think hospice is only for people who are very close to passing away. And I actually had no idea of all the other things that the hospice can and will do.
I went to my first group meeting in Clacton with a lot of apprehension and thinking well I’ll see what it’s like but if it’s not for me I won’t do another one. And I found it almost like walking in to a place like going home. You’re in a place where everybody can accept you as you are whereas in the outside world you just become a disabled person. Lifesaving for me. And I definitely need the social side of it to come out to. When you live on your own it can get very, very lonely so having something to look forward to and people to come and see and people who can sort out any problems you’ve got medically, it is wonderful.
It’s just been adapting my lifestyle to become a new person and to have a life with a disability, to know my limits, to know when I need to stop and on a good day to enjoy it as much as I can.
They’ve sorted out my medication and I’m not in any pain anymore. And I feel well, I feel happy, I feel better than I have done in months because without pain you I can move better and I can do more and I can feel more like the me that I was instead of the disabled me I was when I first started this journey with the hospice. They have done a fantastic job.
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