"Having a laugh about it takes its power away a little bit"
Adrian is in his early 40s and is living with cancer. In this short video (transcript below) he talks about his experience with St Helena, about keeping positive, and his 'man club'.
Here you can read the transcript:
Sleep gets in the way. Fatigue is… that’s the worst thing.
One day my parents knocked on the door and took me straight to A&E because I was quite bad by then.
You think to yourself, a day or two on the sofa and I’ll be right but obviously I wasn’t.
I’ve got a little tumour in this side in the top of my lung so that’s just started to grow again and it got into my bones so I think it was in my pelvis so I was zapped with the radiotherapy machine in there and then I forgot how to walk so I was in a wheelchair for quite a while. With physiotherapy you have to do the exercises they give you but I was really strict about it and it paid off. I’ve almost got the swagger back in my walk, almost!
I’m a take-it-in-my-stride sort of person. What happens, happens, and there’s very little you can do about it regardless of whether you’ve caused it to yourself with smoking for 20 years. But you know, we knew the risks. I find that having a chat about it, having a laugh about it takes its power away a little bit. You know, everyone’s like 'ohh cancer, really scary'. I mean yeah, it is scary, it is serious, but let’s not all get too morbid about things. You know, I’m a, I think, keep yourself busy and do things, do things you always wanted to do. You know just keeping positive and keep on going every day.
I had a respite week which is time when my parents can go off and have a little break, yeah, you can’t beat a respite week. One beautiful sunny day and they wheeled one of the people out into the garden and they had obviously their children visiting them and the grandchildren all running around in amongst the flowers in the sunshine and I thought, you wouldn’t get that anywhere else. They just pushed the bed outside, can’t even get into a wheelchair, not to worry, we’ll get you outside and I thought that’s just the image for this place, that’s exactly what you expect, and it’s what you get.
Everybody here can’t do enough for you. Someone will stick their head in the door and go ‘oh, do you want a cup of tea?’. Occasionally there’s a, I don’t know, I call it my man club when it’s just guys. I make sure I go because I bring something to the group, whatever that is and that’s what I always say to the people, the guys, just come even if you don’t really feel like it drag yourself out and come and have a chat with us.
You know, what’s the worst that can happen? You might even enjoy yourself.
My future? Who knows how long it’s going to be. I’m going to live life as best I can now.
To contact the St Helena Fundraising team, please telephone 01206 931 468 or email email@example.com , Monday to Friday between 9.00am and 5.00pm.
24 hour advice: SinglePoint 01206 890 360
SinglePoint is a 24/7 advice and support helpline which helps to coordinate an individual’s care with the hospice. SinglePoint also works alongside other healthcare services such as GPs, Community Nurses or Specialists.
To contact a patient at The Hospice please find the address and telephone number below. Phone calls can be made to patients at any time of the day or week. You can contact Inpatient Services 24 hours a day, 7 days a week.
The Hospice, Myland Hall, Barncroft Close, Highwoods, Colchester, C04 9JU
Telephone: 01206 845 566
You can contact The Hospice in the Home Team Monday to Friday, between 9.00am and 5.00pm on:
Telephone: 01206 845 566
Tendring community team
Telephone: 01255 221 222
You can contact the Joan Tomkins Centre (Colchester) Monday to Friday between 9.00am and 5.00pm on:
Telephone: 01206 848 163
Fax: 01206 752 245
You can contact the St Helena Tendring Centre (Clacton) Monday to Friday, between 9.00am and 5.00pm on 01255 221 222
Tendring Centre Postcode for Sat Navs: CO15 1EU
The HR Team can be contacted Monday to Friday between 9.00am and 5.00pm on 01206 931 466
To contact the St Helena Finance Team please telephone 01206 931 450 Monday to Friday, 9.00am to 5.00pm
The Volunteer Services team can be contacted Monday to Friday between 9.00am and 5.00pm on 01206 931 466
For all media enquiries between 9.00am and 5.00pm, Monday to Friday, please phone the Marketing and Communications team directly on 01206 931 464
If you, or a member of your family has a life-limiting illness and would like to discuss whether St Helena care services can help, you can contact the SinglePoint telephone service 24 hours a day, 7 days a week on 01206 890 360
To contact the St Helena Bereavement Support team please telephone the bereavement helpline: 01206 984 274, Monday to Friday, 9.00am to 5.00pm
The Learning and Development Centre is open Monday to Friday between 9.00am and 5.00pm and can be contacted on 01206 851 560
For more information on the St Helena Service User Group please contact Chair, Ken Aldred on 01206 751 397
To contact the Lottery team please call 0800 285 1390 or visit the website here, Monday to Friday between 9am and 5pm.
If you would like to write to or visit the Lottery team, the address is: Your Hospice Lottery Office Unit 6 The Atrium, Phoenix Square, Wyncolls Road, Colchester CO4 9AS.
Feedback, comments and complaints about St Helena care and support services may be made verbally or in writing to: Director of Care, St Helena, Myland Hall, Barncroft Close, Highwoods, Colchester, CO4 9JU. To speak to a member of our team, call 01206 845 566